Bereaved mothers warn of rare category of ‘sudden death’ that affects children – symptoms


There is a slight tendency for them to run in families. If a child’s parents, brothers or sisters, or other close relatives have had febrile seizures, the child is a bit more likely to have them. The NHS explains that these seizures usually last for less than five minutes during which children will become stiff, their arms and legs may twitch, they might lose consciousness or start to foam at the mouth.

Nikki lost her daughter Rosie in 2013, who she described as a “very happy and completely healthy child,” until suddenly one night aged two and a quarter, she died in her sleep.

“I still don’t know why she [Rosie] died to this day. Our whole family felt very isolated and alone, we had never heard that this was possible,” Nikki explained. “So along with two other grieving mums that had had the same thing happen to their sons, Rex and Yianni, we decided that we really wanted to help other families feel less alone and stop this hopefully happening in the future.”

Together, with support from an affiliate charity in the U.S., they created SUDC UK which is committed to help researchers further understand and expand on the subject.

In December, a breakthrough publication revealed data on the first genetic risk factors identified for the sudden unexplained deaths of children over one year.

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